POTS – The Bookish Mutant

Happy Monday, bibliophiles!

It’s July again, which means—though it’s too often overlooked—that it’s Disability Pride Month here in the U.S.! Even as intersectional as feminism and diversity efforts have become in recent years, the disabled community has been left out of the picture more often than not. YA books are no exception—even now, it’s difficult to find good, solid disability rep, and even harder to find books from disabled authors. So uplifting disabled voices is always important, as with uplifting all kinds of marginalized voices.

I’ve talked a little about good and bad disability rep on this blog, but I haven’t talked about how it affects me—I did put it in my bio a few months ago offhandedly, but I’m disabled as well. I have sensory processing disorder (SPD), a neurological disability that causes me to over-respond to sensory input, mainly sound; My nervous system doesn’t translate stimulus like a neurotypical brain would, making me over-respond to certain sensory input. Big crowds, loud noises (fire alarms, stopping buses, and almost anything that you can find in a city) are major causes of anxiety and discomfort for me, and often cause me to go into a fight-or-flight position or overload entirely.

As a result, being in situations with lots of sensory stimuli, such as school or social gatherings, can be exhausting, what with trying to juggle keeping my cool with said stimuli and participating fully in an activity. It also affects how I go about ordinary tasks as well—driving, for instance, has been a struggle, what with my hypersensitivity combined with my iffy-at-best motor coordination. (Part of SPD is that the nervous system doesn’t fully integrate all of my senses, which is why tasks like these are difficult for me.) SPD makes me feel everything—sound especially—far more intensely than a neurotypical person might, which often overloads my system.

Here’s the thing: although I’ve seen other parts of my identity—bisexuality, being mixed race, or even just personalities like mine—represented in books, I’ve never seen SPD represented in a book. Not on TV, movies, or any other kind of media, either. Never. I’ve been looking for years, but most of the time, what comes up when I search for books with characters that have SPD usually ends up being help books for parents with SPD kids. (Not to dismiss the value of those books—just not what I’m looking for.) There have been a few, but even then, they haven’t been available at the library. (I’ve got one on hold though—let’s hope Not If I Can Help It is good) I could always be missing something (PLS IF ANYBODY KNOWS ANY KIND OF MEDIA WITH GOOD SPD REP DROP SOME IN THE COMMENTS BEGGING YOU), but it’s been frustrating going to google and getting something that decidedly wasn’t what you were going for.

Even though I’ve seen myself represented in other ways, it’s frustrating to not have book characters—even side characters—that have similar experiences to me. Growing up, I had my fair share of not-so-subtle teasing for expressing some of my symptoms, and in that respect, I had no role models, no fictional characters to really look up to in that respect. That’s part of why I’m writing books with protagonists that have SPD—there’s always a kid out there who just needs a fictional character to look up to when they have nobody else. This is why representation matters—for those who never saw themselves represented growing up, and for those to come who may have the chance to feel represented.

So here are my disability pride month recs for 2022—not all of them are from disabled authors, but I’ve done my best to compile a list from a variety of genres, a variety of backgrounds (POC, queer, etc.), and a variety of disabilities.

(for my list from 2021, click here!)

Let’s begin, shall we?

YA BOOKS FOR DISABILITY PRIDE MONTH

One for All, Lillie Lainoff

GENRES: Historical fiction, retellings

REP: MC with POTS (disabled author)

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

A Three Musketeers retelling featuring a swordfighting, chronically ill protagonist!

The Reckless Kind, Carly Heath

GENRES: Historical fiction, romance, LGBTQ+

REP: MC with Waardenburg syndrome, MC with Brown-Séquard syndrome, MC with anxiety, side characters with post-concussion syndrome (disabled author)

MY RATING: ⭐️⭐️⭐️⭐️⭐️

I’ll be reviewing this one soon—a beautiful and tender tale of a disabled, queerplatonic triad in 1900’s Norway!

The Weight of Our Sky, Hanna Alkaf

GENRES: Historical fiction

REP: MC has OCD

MY RATING: ⭐️⭐️⭐️⭐️

A harrowing story of a girl with OCD in the Philippines searching for her mother during the race riots of 1969.

The Night When No One Had Sex, Kalena Miller

GENRES: Contemporary/realistic fiction, romance, LGBTQ+

REP: Multiple POVs; one MC has Lupus (chronic illness)

MY RATING: ⭐️⭐️⭐️.5

A diverse and funny story of four pairs of teenagers on prom night and a humorously failed sex pact.

The Boy Who Steals Houses, C.G. Drews

GENRES: Contemporary/realistic fiction, romance

REP: MC has anxiety, autistic side character (disabled author)

MY RATING: ⭐️⭐️⭐️.5

A messy and emotional story of a boy and his brother making their own in a world that turns its back on them.

A Quiet Kind of Thunder, Sara Barnard

GENRES: Contemporary/realistic fiction, romance

REP: MC is selectively mute, Deaf love interest

MY RATING: ⭐️⭐️⭐️.5

A tender, sweet romance with disability front and center!

Gallant, V.E. Schwab

GENRES: Paranormal, fantasy

REP: MC is mute and uses sign language to communicate

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

Though this wasn’t my favorite V.E. Schwab book, I loved its paranormal atmosphere!

Lakelore, Anna-Marie McLemore

GENRES: Magical realism, fantasy, fiction, LGBTQ+

REP: MC with ADHD, MC with dyslexia (disabled author)

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

Lakelore is one of the most intersectional pieces of magical realism or fantasy that I’ve ever read—both protagonists are nonbinary, Latinx, and neurodivergent!

Meet Me in Outer Space, Melinda Grace

GENRES: Contemporary/realistic fiction, romance

REP: MC has Central Auditory Processing Disorder (CAPD) (disabled author)

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

Although I wasn’t as big of a fan of the romance, I loved how Meet Me in Outer Space explored navigating disability in college!

On the Edge of Gone, Corinne Duyvis

GENRES: Science fiction, survival, post-apocalyptic

REP: Autistic MC (disabled author)

MY RATING: ⭐️⭐️⭐️.5

A gripping post-apocalyptic book featuring a determined, Autistic protagonist!

TELL ME WHAT YOU THINK! Have you read any of these books, and if so, what did you think of them? What are your favorite YA books with disability rep? And please, does anybody have any recs for media with good SPD rep? Kinda desperate over here…

(I can only go with my headcanon that Jean Grey from X-Men has SPD for so long, folks, please…)

Today’s song:

I wanna hate Jack White so bad but HE JUST KEEPS PUTTING OUT SONGS LIKE THIS

That’s it for this post! Have a wonderful rest of your day, and take care of yourselves!

Happy Tuesday, bibliophiles!

Disability representation—especially in YA—is few and far between, and even when I do find it, a lot of disability rep is still written by abled authors. (That isn’t always necessarily a bad thing, but it’s easy to fall into harmful tropes and misrepresent disability that way.) So when I heard about One for All, I was so excited—a feminist, historical fiction novel about a girl with a chronic illness! And beyond that—a girl with a chronic illness WHO SWORDFIGHTS. Doesn’t get much better than that, am I right? My copy finally came from the library last week, and although it wasn’t the perfect book, I enjoyed a lot of it!

Enjoy this week’s review!

One for All – Lillie Lainoff

Tania de Batz is determined for the world to see her as more than just a “sick girl.” As the daughter of a former musketeer, her passion is swordfighting, and with the help of her father, she’s become a skilled fighter. But when her father is brutally murdered, she discovers his dying request to send her to a finishing school.

But what she finds at L’Academie des Marieés is no finishing school—it’s a secretive school that trains young women as musketeers. Tania is soon swept into a world of swords and secrecy, and soon, she and her fellow students have an assassination plot to uncover. The only clue to the plot—and maybe even her father’s murder—lies in a boy named Étienne, but his charms may be Tania’s undoing.

TW/CW: ableism, blood, murder, loss of a loved one, past mention of sexual assault

Good disability representation—especially in YA—seems to only happen once in a blue moon. So I was so happy to find this book—a feminist historical fiction book written by a disabled author, no less! And while I did have a few problems with the story overall, One for All was no doubt a fantastic debut!

First things first—disability rep! While I can’t speak to the accuracy, Lillie Lainoff (the author) has the same chronic illness as Tania—Postural Orthostatic Tachycardia Syndrome (POTS)! Disabled representation from disabled voices always makes my heart so happy! For me, it’s even better that One for All is a historical fiction piece; most books with disabled characters only exist in contemporary/realistic fiction books, and I adamantly believe that disability rep in genres like historical fiction, fantasy, and science fiction is just as important, if not more important; it’s crucial for disabled readers to know that they don’t only exist in modern realistic fiction realities—they have always existed in history, and they can exist in fantasy and sci-fi worlds as well. One for All did a fantastic job at detailing all the aspects of Tania’s POTS and how it affected her daily life, from her routine to her social interactions and childhood. So many chronically ill readers will be able to see themselves in Tania, and that, to me, is immensely impactful.

Beyond that, One for All is fiercely feminist! It’s set in France in the 1600’s, and the themes of empowerment and sisterhood ran deeply through it. Throughout most of the book, Tania struggles with her place in the world as a disabled woman in a time where both are frowned upon, but her journey for self-empowerment is one that is sure to resonate with so many readers. Although some of the other students don’t treat Tania with the respect she deserves at first, there are themes of recognizing and correcting your previous ableism. The friendship that Tania eventually shares with the rest of the fellow L’Academie des Marieés students is wonderfully tender and strong, and it makes for an incredibly empowering novel overall.

As much as I loved the aforementioned aspects, however, there were a few aspects of One for All that I didn’t like as much. For the most part, I liked the writing style well enough; Lainoff’s prose flowed well and was appropriately descriptive when the time called for it. However, Lainoff’s style tended to fall towards the over-the-top side of the spectrum. I could let it slide in most instances—it fit with the mood and tone of the book in general—but in some cases, it felt overly purple and theatrical. It had a dramatic feel to it, and while it fit the classic retelling tone at times, it felt superfluous in other cases.

Additionally, I wasn’t quite as invested in the assassination part of the plot as I was in the rest of the book. Seeing as that (after Tania’s father’s murder) was the main driving force to the plot, it didn’t come through all the way; it was overshadowed by more mundane character interactions (which I did like), and as a result, felt rushed and oversimplified. For something that was supposed to be the primary inciting incident of the second half of the book or so, it felt more like a subplot than anything. As a result, I felt my mind wandering a bit during these parts, but it didn’t take me out of the book entirely.

All in all, a feminist retelling with a disabled heroine who all readers will want to cheer on. 3.75 stars, rounded up to 4!

One for All is a standalone and Lillie Lainoff’s debut novel.

Today’s song:

That’s it for this week’s Book Review Tuesday! Have a wonderful rest of your day, and take care of yourselves!

Tag: POTS

YA Books for Disability Pride Month (2022 Edition) + my experience with SPD and why representation really, really matters

Book Review Tuesday (4/26/22) – One for All