Tag: Disability Pride Month 2022

Posted in Monthly Wrap-Ups

July 2022 Wrap-Up 🫠

Posted on by madeline @ The Bookish Mutant

Happy Sunday, bibliophiles!

As you can see above, the melting emoji represents my slow melting, a la the Wicked Witch of the West, because July in Colorado always threatens to melt me into a slushy puddle. At least we got some rain. (And hail, one time? got enough that it looked like snow in certain parts of the yard…)

GENERAL THOUGHTS:

Hot as it was, I’d say that July was another good month of summer. I’ve had tons more time to read and relax, and even though college is always on my mind nowadays, the time off has been good to collect my thoughts. I’ve gone hiking a few times, seen some fun movies, and tried to exercise a little more.

I got to read tons this month, and although it was generally a mixed bag (a lot more books in the 3-star range than usual), I still found some gems in the mix. For Disability Pride Month, I tried to focus on books with disabled characters, and I’ve found some reads with great disability rep—including the first book I’ve ever read with SPD rep! (Thanks, Carolyn Mackler!!) Camp NanoWriMo is nearly over—it’s had its ups and downs (couldn’t find the stats page for a while and fell behind on my word count, hit command v instead of command b and accidentally pasted the whole Pinnochio trailer into my document), but I’m so close to 45,000 words now!!

Other than that, I’ve just been playing my guitar, recovering from the last two episodes of Stranger Things (OW), seeing Thor: Love and Thunder (pure Taika Waititi fun), drawing, and listening to an excess of Peter Gabriel.

Also, I figured I’d give everybody an update on Ringo, since I haven’t posted about him much since we got him; he’s 7 months old now and even more of a menace to society, but he has the sweetest face…

the face of a serial foot biter

READING AND BLOGGING:

I read 25 books this month! This is probably gonna be the most books I’ll be able to read in a month, since it’s the middle of summer. It was a mixed bag, as always, but I found a few amazing 5-star reads in the bunch.

1 – 1.75 stars:

Among Thieves

2 – 2.75 stars:

Fortune Favors the Dead

3 – 3.75 stars:

Breathe and Count Back from Ten

4 – 4.75 stars:

Not If I Can Help It

5 stars:

The Reckless Kind

FAVORITE BOOK OF THE MONTH: The Amazing Screw-On Head and Other Curious Objects – 5 stars

The Amazing Screw-On Head and Other Curious Objects

POSTS I’M PROUD OF :

POSTS FROM OTHER WONDERFUL PEOPLE THAT I ENJOYED:

SONGS/ALBUMS THAT I ENJOYED:

yeah spoiler alert I did listen to more Peter Gabriel
Kate Bush is hit or miss for me but when she hits it for me she HITS it
going through an 80’s period this month I guess??
HOOOOOOOOOOOWEE time go to back to my sad girl roots
I haven’t listened to much Japanese Breakfast but I fell in love with this one INSTANTLY
MORE PETER GABRIEL BC I LOVED SO
I really need to listen to more IDLES bc I’ve loved every song I’ve heard of theirs

DID I FOLLOW THROUGH ON MY JULY GOALS?

  • Read at least 20 books: 25!
  • Get through Camp NaNoWriMo: We’ll see about that later tonight…

GOALS FOR AUGUST:

  • Get through the first few weeks of college (AAAAAA)
  • Enjoy my birthday (which also happens to be on the first day of classes…yeehaw😀)

Today’s song:

That’s it for this month in blogging! Have a wonderful rest of your day, and take care of yourselves!

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Posted in Book Review Tuesday

Book Review Tuesday (7/19/22) – Not If I Can Help It

Posted on by madeline @ The Bookish Mutant

Happy Tuesday, bibliophiles!

Ever since I realized that literature has been something I could see myself in, I’ve been looking high and low for books with SPD representation. For years, all I managed to find were help books for parents SPD children (again—not diminishing their value, I was just looking for something else) and hardly any fiction in sight. By some miracle, I ended up coming across this book recently, and I was elated to find a book that finally reflected my disability! I set my expectations hesitantly high, but I ended up adoring Not If I Can Help It; I wish I had it when I was Willa’s age.

Enjoy this week’s review!

Not If I Can Help It – Carolyn Mackler

Willa has Sensory Processing Disorder—she hates the texture of certain foods, tags and seams on clothes irritate her to no end, and she gets overwhelmed easily. With her occupational therapist, she’s been able to manage it—and keep it a secret from her 5th-grade class. But when her dad breaks the news that he’s engaged to her best friend’s mom, she struggles to handle the change—she loves her best friend Ruby, but being her sister would be another situation entirely. As 5th grade draws to a close, can she and Ruby work things out—as best friends, and as sisters?

TW/CW: sensory overload, bullying

I’m going to go so far as to say that Not If I Can Help It is a fairly monumental book for me. It’s the first book I’ve ever read with a protagonist who has SPD, and as somebody with SPD, it fills my heart to see myself in a book like this. I’m so, so, so glad this book exists.

I’ve been trying to find any kind of SPD fiction for years, and Not If I Can Help It surprised me with how realistically and respectfully SPD was handled. I related so much to Willa—even though our specific brands of SPD differed (Willa’s seems to be more tactile, whereas mine are mainly auditory), I related so much to Willa’s experience, from her experience with handling change to the everyday things she does with her parents to cope with her SPD. (I JUST GOT MY OWN BODY SOCK TOO??? we love the body sock in this house) I’ve been going back to OT in preparation for college lately, and I also loved the scenes with Willa and her therapist in the sensory gym—again, so respectfully written and authentic! Mackler mentions in the acknowledgments that Not If I Can Help It was partially based off of her experience with one of her sons, who has SPD, and this is bound to be a book that so many of us with SPD will relate to—I certainly did.

It’s been a while since I’ve read any middle grade, but the gap was a lot easier to bridge than I thought it would be. Mackler’s writing, along with our shared experience, made me instantly feel for Willa. She’s such a unique, determined character, so full of life and spirit. I loved her individual quirks, and her growth over the novel made me wish that I had this kind of book when I was her age—I could’ve used a Willa when I was going into middle school. (Also, kudos to Willa for managing her SPD on top of living in MANHATTAN, wow…)

The story was additionally a super sweet one. I completely related to Willa’s reticence to having change, and all of the changes she experiences (her dad getting married to her best friend’s mom, going to middle school, and her longtime babysitter moving, to name a few) served to help her grow so much as a character. All of the supporting characters were wonderfully unique in their own ways, adding not only to the story, but helping to emphasize the point, to paraphrase Ruby’s mom, that we all have our “things” going on—not everybody is as normal as you may think they are, and that there will be all kinds of people to support you along your journey.

All in all, a book that I sorely wished that I’d been able to read when I was younger, but one that I’m so glad I got to read here and now. This is the first book with SPD rep that I’ve read, and given how authentically it was represented, it will always have a special place in my heart. Thanks so much to Carolyn Mackler and Willa. 💗 4.5 stars!

Not If I Can Help It is a standalone, but Carolyn Mackler is also the author of several middle grade and YA books, including Tangled, Infinite In Between, Love and Other Four-Letter Words, and The Earth, My Butt, and Other Big Round Things.

Today’s song:

adding this song to my internal list of songs with god tier intros

That’s it for this week’s Book Review Tuesday! Have a wonderful rest of your day, and take care of yourselves!

Posted in Books

YA Books for Disability Pride Month (2022 Edition) + my experience with SPD and why representation really, really matters

Posted on by madeline @ The Bookish Mutant

Happy Monday, bibliophiles!

It’s July again, which means—though it’s too often overlooked—that it’s Disability Pride Month here in the U.S.! Even as intersectional as feminism and diversity efforts have become in recent years, the disabled community has been left out of the picture more often than not. YA books are no exception—even now, it’s difficult to find good, solid disability rep, and even harder to find books from disabled authors. So uplifting disabled voices is always important, as with uplifting all kinds of marginalized voices.

I’ve talked a little about good and bad disability rep on this blog, but I haven’t talked about how it affects me—I did put it in my bio a few months ago offhandedly, but I’m disabled as well. I have sensory processing disorder (SPD), a neurological disability that causes me to over-respond to sensory input, mainly sound; My nervous system doesn’t translate stimulus like a neurotypical brain would, making me over-respond to certain sensory input. Big crowds, loud noises (fire alarms, stopping buses, and almost anything that you can find in a city) are major causes of anxiety and discomfort for me, and often cause me to go into a fight-or-flight position or overload entirely.

As a result, being in situations with lots of sensory stimuli, such as school or social gatherings, can be exhausting, what with trying to juggle keeping my cool with said stimuli and participating fully in an activity. It also affects how I go about ordinary tasks as well—driving, for instance, has been a struggle, what with my hypersensitivity combined with my iffy-at-best motor coordination. (Part of SPD is that the nervous system doesn’t fully integrate all of my senses, which is why tasks like these are difficult for me.) SPD makes me feel everything—sound especially—far more intensely than a neurotypical person might, which often overloads my system.

Here’s the thing: although I’ve seen other parts of my identity—bisexuality, being mixed race, or even just personalities like mine—represented in books, I’ve never seen SPD represented in a book. Not on TV, movies, or any other kind of media, either. Never. I’ve been looking for years, but most of the time, what comes up when I search for books with characters that have SPD usually ends up being help books for parents with SPD kids. (Not to dismiss the value of those books—just not what I’m looking for.) There have been a few, but even then, they haven’t been available at the library. (I’ve got one on hold though—let’s hope Not If I Can Help It is good) I could always be missing something (PLS IF ANYBODY KNOWS ANY KIND OF MEDIA WITH GOOD SPD REP DROP SOME IN THE COMMENTS BEGGING YOU), but it’s been frustrating going to google and getting something that decidedly wasn’t what you were going for.

Even though I’ve seen myself represented in other ways, it’s frustrating to not have book characters—even side characters—that have similar experiences to me. Growing up, I had my fair share of not-so-subtle teasing for expressing some of my symptoms, and in that respect, I had no role models, no fictional characters to really look up to in that respect. That’s part of why I’m writing books with protagonists that have SPD—there’s always a kid out there who just needs a fictional character to look up to when they have nobody else. This is why representation matters—for those who never saw themselves represented growing up, and for those to come who may have the chance to feel represented.

So here are my disability pride month recs for 2022—not all of them are from disabled authors, but I’ve done my best to compile a list from a variety of genres, a variety of backgrounds (POC, queer, etc.), and a variety of disabilities.

(for my list from 2021, click here!)

Let’s begin, shall we?

YA BOOKS FOR DISABILITY PRIDE MONTH

One for All, Lillie Lainoff

GENRES: Historical fiction, retellings

REP: MC with POTS (disabled author)

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

A Three Musketeers retelling featuring a swordfighting, chronically ill protagonist!

The Reckless Kind, Carly Heath

GENRES: Historical fiction, romance, LGBTQ+

REP: MC with Waardenburg syndrome, MC with Brown-Séquard syndrome, MC with anxiety, side characters with post-concussion syndrome (disabled author)

MY RATING: ⭐️⭐️⭐️⭐️⭐️

I’ll be reviewing this one soon—a beautiful and tender tale of a disabled, queerplatonic triad in 1900’s Norway!

The Weight of Our Sky, Hanna Alkaf

GENRES: Historical fiction

REP: MC has OCD

MY RATING: ⭐️⭐️⭐️⭐️

A harrowing story of a girl with OCD in the Philippines searching for her mother during the race riots of 1969.

The Night When No One Had Sex, Kalena Miller

GENRES: Contemporary/realistic fiction, romance, LGBTQ+

REP: Multiple POVs; one MC has Lupus (chronic illness)

MY RATING: ⭐️⭐️⭐️.5

A diverse and funny story of four pairs of teenagers on prom night and a humorously failed sex pact.

The Boy Who Steals Houses, C.G. Drews

GENRES: Contemporary/realistic fiction, romance

REP: MC has anxiety, autistic side character (disabled author)

MY RATING: ⭐️⭐️⭐️.5

A messy and emotional story of a boy and his brother making their own in a world that turns its back on them.

A Quiet Kind of Thunder, Sara Barnard

GENRES: Contemporary/realistic fiction, romance

REP: MC is selectively mute, Deaf love interest

MY RATING: ⭐️⭐️⭐️.5

A tender, sweet romance with disability front and center!

Gallant, V.E. Schwab

GENRES: Paranormal, fantasy

REP: MC is mute and uses sign language to communicate

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

Though this wasn’t my favorite V.E. Schwab book, I loved its paranormal atmosphere!

Lakelore, Anna-Marie McLemore

GENRES: Magical realism, fantasy, fiction, LGBTQ+

REP: MC with ADHD, MC with dyslexia (disabled author)

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

Lakelore is one of the most intersectional pieces of magical realism or fantasy that I’ve ever read—both protagonists are nonbinary, Latinx, and neurodivergent!

Meet Me in Outer Space, Melinda Grace

GENRES: Contemporary/realistic fiction, romance

REP: MC has Central Auditory Processing Disorder (CAPD) (disabled author)

MY RATING: ⭐️⭐️⭐️.75, rounded up to ⭐️⭐️⭐️⭐️

Although I wasn’t as big of a fan of the romance, I loved how Meet Me in Outer Space explored navigating disability in college!

On the Edge of Gone, Corinne Duyvis

GENRES: Science fiction, survival, post-apocalyptic

REP: Autistic MC (disabled author)

MY RATING: ⭐️⭐️⭐️.5

A gripping post-apocalyptic book featuring a determined, Autistic protagonist!

TELL ME WHAT YOU THINK! Have you read any of these books, and if so, what did you think of them? What are your favorite YA books with disability rep? And please, does anybody have any recs for media with good SPD rep? Kinda desperate over here…

(I can only go with my headcanon that Jean Grey from X-Men has SPD for so long, folks, please…)

Today’s song:

I wanna hate Jack White so bad but HE JUST KEEPS PUTTING OUT SONGS LIKE THIS

That’s it for this post! Have a wonderful rest of your day, and take care of yourselves!